• Shoutout to spoonies who have to keep working despite their pain and fatigue. I’m pretty much ... important positivity shoutout my text chronic illness chronically ill arthritis fibro spoonies ibs disabilityhealth •

Shoutout to spoonies who have to keep working despite their pain and fatigue. I’m pretty much motionless on a daily basis and it’s bad enough, I can’t imagine how hard it is to keep going like nothing is wrong. You are all such badasses.


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1216 notes / 4 years 6 months ago
Shoutout to spoonies who have to keep working despite their pain and fatigue. I’m pretty much motionless on a daily basis and it’s bad enough, I can’t imagine how hard it is to keep going like nothing is wrong. You are all such badasses.
My three states
Mentally okay but physically deadPhysically okay but mentally deadSuper double dead
Reblog this if you suffer from a chronic illness and have ever been called lazy.
Okay, does anyone else do this or is it just me? I’ll have good days and bad days with my illness. But on the good days I somehow convince myself that there was never anything wrong with me. I’ll be like, "Psshhhh, yeah I’m totally okay. I guess all the doctors were wrong. Haha,...
  • Healthy People:I hate my body!
  • Spoonies:My body hates me!
  • Healthy People:I hate my job!
  • Spoonies:I wish I could work!
  • Healthy People:I stayed out too late; I'm so tired today!
  • Spoonies:I washed my hair today; I'm too exhausted to do anything else!
  • Healthy People:Why are you depressed?
  • Spoonies:There's no "trigger" for depression; it's not just sadness. Depression happens because the chemicals in my head are screwy!
  • ...
10 ways to be supportive of people with chronic illnesses:
Ask about their illness.Take into account they may not be able to do things because of their illness.Respect their decision to do something or not to do something.Be supportive and helpful in either situation.Don’t offer miracle cures that your cousin’s friend’s sister’s husband used.Don’t tell peop...
  • 1:what have you been diagnosed with, (and possibly self diagnosed with)?
  • 2:what will you tend to do at nights, when you can't sleep?
  • 3:worst experience/side effects of a medication?
  • 4:how has your condition impacted your mental health?
  • 5:describe your social life
  • 6:hardest thing to do when you are flaring?
  • 7:your worries for the future?
  • 8:favourite comfort food?
  • ...
reminders to friends of chronically ill people:
if we actually say it hurts, that means it REALLY HURTS if we dont say it hurts, it probably still hurts if we spoke up every time we were uncomfortable/in pain we would be yelling constantly never ask if we’re “still sick” never act surprised that we’re “still sick” we’re probably gonna be still si...
before completely dismissing the advantages of technology, pls step outside of your able-bodied perspective & consider what it means for those of us who are disabled + spend countless days of our years confined to our beds, unable to “get up & enjoy life outside of a computer/smartphone scre...
  • Me:[ wakes up ]
  • Me:Haha, wow. What a day it has been.
  • Me:[ rolls over and goes back to sleep ]
A simple, beautiful way to track your chronic illness. HOLY FUCK SPOONIES LOOK AT THIS29 DAYS LEFT LETS FUND THIS!Flaredown is a web site and mobile app that lets your track your...
"at least you don't have cancer..."
the next time someone tells me “it could be worse, at least you don’t have cancer” i’m just gonna stare at them for a really long time and say something like.. “can you even pronounce my condition? do you even know the treatment protocol? do you know anyone with a chron...